Free tools from Trellis
Care Passport
A one-page snapshot for emergencies and new caregivers — who the person is, how they communicate, what helps, what to avoid, and who to call. Print it, fill it in, keep it on the fridge.
What Works Sheet
A first-shift handoff for any new caregiver: the strategies, routines, and supports that actually work for this person — captured on a single page so nobody has to learn by trial and error.
Family Support & Advocacy
National organizations that help families navigate services, connect with peers, and advocate for the people they love.
- The ArcNational
The largest national community-based organization advocating for people with intellectual and developmental disabilities.
- Center for Parent Information & ResourcesNational
The hub for the Parent Training and Information Centers (PTIs) located in every state.
- Family VoicesNational
A national network helping families navigate care for children with special health care needs.
- Parent to Parent USANational
Connects parents of children with disabilities with trained, experienced peer mentors.
Crisis & Mental Health
Immediate support and ongoing mental-health resources.
Benefits, Funding & Financial Planning
Programs that fund care and protect long-term financial security.
- ABLE National Resource CenterNational
Tax-advantaged ABLE savings accounts that don't jeopardize means-tested benefits.
- Medicaid Home & Community-Based ServicesNational
Federal information on HCBS waivers that fund in-home and community support.
- Social Security (SSI / SSDI)National
Apply for and manage Supplemental Security Income and disability benefits.
Education & Transition to Adulthood
Special-education rights, IEP support, and the move into adult services.
Condition-Specific Organizations
Deep, condition-focused communities and clinical resources.
- Autism SocietyNational
Connection, education, and advocacy for autistic people and their families.
- National Down Syndrome SocietyNational
Programs, advocacy, and resources for people with Down syndrome across the lifespan.
- Special OlympicsNational
Sports, health, and inclusion programs for people with intellectual disabilities.
For Siblings & Caregivers
Support for the people doing the supporting.
Trellis links to these organizations as a convenience and is not affiliated with them. Always verify program details directly with each organization.